CindyFrench-stranger than fiction stories

about facing life with hope and confidence, no matter the diagnosis

Archive for the tag “rheumatoid arthritis”

And it is really all about prayer

Ohmigoodness, did I get some lessons on Thursday this week! First I learned that sometimes, we just can’t pray right or enough for ourselves. It takes the power of two or more just like scripture says. And then once re-learning that lesson, I had to learn again, that my things, my people and my pets aren’t mine.

Let me start at the beginning. Last Thursday, I was trying hard to get out of my car and then retrieve my purse and Bible for the weekly Bible study group I go to (BSF) A woman nearby saw me struggling and asked if she could help me. I said yes, if you have some Remicade or some pain medication, kinda flippantly. But she came right over and looked at me and said you look like you are in terrible pain. I said I am. I don’t think there is a place I don’t hurt, cause even my lip still hurts at this point. She said, “Let me pray for you.” And then she sort of put her arms around me and she began to pray and I mean pray.  I knew this woman was no stranger to prayer and so my heart and mind and spirit joined with hers and agreed with her prayer for my healing. Then when she was done, she took my chin in her fingers, looked me in the eyes and said now you believe it! And then she walked right off into the building.

I gathered my things and took my first few steps and immediately knew that I had no pain, I stood up straight and walked faster-a normal gait-without pain.  I entered the building and signed in, got my lesson for the next week and went and sat down next to one of my friends. I was in a daze! She said, “what’s up with you?” I told her what had happened in the parking lot–we both got tears in our eyes and then it was time for the hymns. I usually try to skip this part, because I haven’t been able to sing since my stroke 6 yrs ago–generally I just hum along, but I was urged to open my mouth and sing and so I did and I sang! I don’t know how good I sounded, but let me tell you, to me going from a frog sounding voice to singing back to  more of a soprano or close to it was amazing! So now I am thinking wonder what else is healed? Cause I have lot’s of fallen apparts. I am 60. It happens. But I thought I had had everything fixed that could be fixed way before now. Turns out I was wrong. 

I was hurting so much I couldn’t do for myself-I needed that prayer for me. So we need to make it a purpose in our lives for those we know that are sick to go and pray for them-cause they can’t do it themselves, regardless of how strong a believer or prayer warrior they are. That was lesson number 1.

Today is Friday. My Catch-up day-stay home if at all possible day. Things are going well today. Both Dennis and I are getting a lot done. I am very happy because someone I have been recruiting has said yes and is now almost immediately scheduled for an interview. My other calls have gone ok–at least there are things to possibly follow-up on. The market is still so soft here. And when you feel personally involved with a candidate, it makes it tough when you can’t help them. I had just finished a call and my Yorkie who had been on his little bed to the left of my desk was now on my Book of Lists and I could hear the mess-I looked down and he wasn’t making a mess, he was having a seizure. I grabbed him really fast and ran outside to Dennis who had just started washing my car. I was screaming (I don’t do emergencies well, unless they are mine) put the water down and come get the dog! Literally he did throw it down and took Max from me, immediately trying to soothe him and stop the seizure. He walked into the house and I saw the water gushing straight up into the sky and ran to turn it off. Dennis loves that little dog just like I do. It took about 5 minutes for him to stop. This was the second one he’d had–6 or 7 months ago he’d had a short little one but we weren’t really sure that ‘s what it was and he was so fine after, we didn’t do anything. But this time, we rushed up to our vet.  Max checked out ok with his blood, etc. So we were told just to watch him. That if the seizures became more frequent or lasted longer, there was medication for him.  Best case, he might have a mild case of epilepsy, worst case  he’s growing a brain tumor; but it would take an MRI to rule that out-stupid right now and probably impossibly expensive if necessary later. So tonight we got to pray over our puppy whom we both love very much-but again is God’s and we accept that. I also had to pray over an ailing husband…who just hasn’t felt right all day. And when they are heart patients with new pacemakers, it makes it hard to trust and wait things out. But This IS What God has wanted of me. For me to see Him in every detail of my life. Everything that touches it–He has touched it first.  Lesson #2

 

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More Reflections Isaiah 55:6-8 and Romans 8:37-39

As I read the notes from many blogs that come my way, one overwhelming theme is there for all of us. We don’t have to know  the future, because we know the One who holds it. After the year that 2011 has been what sane person is not ” seeking the Lord while he may be found; call on him while he is near. Let the wicked (anyone who is not perfect) forsake his way and the evil man his thoughts. Let him turn to the Lord, and will have mercy on him and to our God, for he will freely pardon. For my thoughts are not your thoughts and my ways are not your ways, declares the Lord.”       They are higher and deeper than anything we can imagine about us. What  I am/have discovered this year is this incredible love of God the Father for me–as He has told me over and over how He loves me and then as we began to talk together what I should do, not do, how I wasn’t trusting Him (I am now) And as I face the uncertainty of 2012 as far as my health is concerned–I know without a doubt that HE has a purpose in this new, added on systemic disease too. At the least, it forced me to go to a new doctor who was able to tell me exactly how sick I really am. For that I am truly grateful. I was headed down the dead man walking path and somehow, I do think God still has things for me to do and people to talk to.  But please pray for me that there is something that can be done for the RA pain. To move around is terrible! I feel like an old woman.

I close with one of my favorite passages: …in all things we are more than conquerors through him who loves us. For I am convinced that neither death, nor life, neither angels nor demons, neither the present nor the future nor any powers neither height nor depth, nor anything else in all creation will be able to separate from the love of God that is in Christ Jesus our Lord.

Come quickly Lord Jesus!

Reflections–December 31, 2011

What a year! Eight times in the hospital for me, twice for my husband, a move– and then there was my whole new deepening relationship with the Lord God. Learning to trust Him for even the basics, learning about His LOVE for me even more incredible. Having Him with me in the ER in May, so surreal now, but thank goodness I wrote about it when it was fresh. Going back over and over to the ER for the asthma, even in Atlanta, at least it’s been since September now.

And my husband had his pacemaker replaced. Hallelujah what a difference in how he feels! It is amazing. I have been praying about his pain-doesn’t have it anymore. I had been praying about how uncomfortable his defibulator/pacemaker was-doesn’t have it anymore. I had been praying about his breathing–he is breathing so freely now.This is great  to see the Lord God answer my prayers.

Now my husband says “get well, too”–

 

More Answers!

I saw my wonderful primary  care doc last week and filled her in on my life the last month or so. She had to keep the lights low, I thought I might have pink eye or that maybe the candida infection had gotten into my eyes. They hurt, were very gritty, like stuff was in them. She was very concerned that I could not get into my ophthalmologist until this week and when I told her of the trouble I was having getting in to see the infectious diseases doc-she said, “stay right here, I’ll take care of it”.  And take care of it she did! I had an appointment with the eye doctor the next morning (most important) and then an appointment with infectious diseases the next Tuesday, early morning. Wow! what having a doc on your side does! She also changed the oral med I was taking for the mouth and lip sores since I had had no healing there at all and she told me to be sure that she got feedback from the docs on my visits.

Between then and now (the 29th) these are the scriptures the Lord has given to me–and how I have needed them!  Grace-Filled Waiting- 2 Cor 4:4-18 We do not lose heart and Yet Will I Rejoice- Habakkuk 3:11-19 Yet I will rejoice in the Lord, I will joy in the God of my salvation.  So here is what happened at the doctors-

I saw the ophthalmologist the next morning and truthfully, I don’t think I have ever had such a thorough exam! The first thing he said was-the good news is you don’t have an infection. The bad news is you have the dryest eyes I have ever seen since I have been practicing. This is why you hurt. I couldn’t believe that dry eyes would do that-and I had even had the surgery to help with dry eyes, so how could this be? He said is was all because of my rheumatoid arthritis. I couldn’t believe it-how could it affect my eyes? but he said it was and went on to say there were probably other areas of my body that were being attacked as well. I needed to see my Rheumatoidologist. I told him about the candida and that I was seeing an infectious diseases specialist on the next Tues and he said he’d get all the info on what he had done and ordered to her. In the meantime, he gave me 2 prescriptions for eyedrops-each 4 times/day and in between those times I was to use over the counter tears. AND then he gave me a prescription for several blood tests!  I was shocked! I have never had that happen either.

Needless to say by the time we finally saw the doc on that Tues, she had a lot of information about me. What was amazing was that she had already  read it. Then the second amazing thing happened. She said my major problem is that I have no immunity and that will get me killed. Right now, that is her first concern-to build me up. So she began to ask me what I did, what’s my stress level (ha), extra curricular activities, etc. I was downplaying it, but remember my sister was with me and spoke right up! The hardest thing for me to give up and what I can’t understand the Lord’s way in this is GriefShare. I also have to stop working at night, rest during the day-in fact rest as much as I can any place, any where, any time that I can. She said I really need to be aware of my surroundings at all times because that’s when triggers can strike and right now my goal should be NO ATTACKS–that way, no presnesdone or solu-medrol gets into my body. So I am really praying that I am attack free.

I have no idea how long I need to be so careful, but I am going to have to take the 3 drugs probably for the rest of my life and even if/when I get my immunity built up-no one is going to want to mess with it by giving me asthma drugs unless it is life and death again. Oh what a place to be in! Well I do trust the team I have now. I believe they can and will work together. So my part will be to pray and to rest and to rely on my God-no stress, remember?

A Systemic Infection!

I saw the pulmonologist. He said there is no need for the bronscopy, he knows it’s everywhere, now that he knows what it is.  As I did, he can track all my infections this year, and the thrush, and the smell. Of course, he looked at me and said “only you!”)  He has put me on an antifungal medicine that is many times stronger than the usual dose. Of course he had to explain that to the insurance company. But I am sure that they want me well so that I don’t continue with so many hospitilizations! And he told them this was the only way! So on the first night  I took 2 pill (400mg) instead of the usual 1pill. Then I am to take them for the next 13 days -gives me a full 2 weeks on the medicine- whereas most people only take the pills for as long as 3 days!  and I don’t know if part of the pill dosage can make a person drag-but this person is! Still I know it is extremely difficult to get rid of and I must get rid of it. They have STOPPED MY REMICAID untill I am rid of it! So now I will be crippled too pretty shortly.

Please pray that I will be strong in the Lord. That I will pray as I know and have experienced! That I will not get down with the pain and let it beat me! I am reading his promises for healing. I  am going to list them so that you can pray as I am praying them-there is power in that.

Jeremiah 17:14  Heal me, O Lord, and I shall be healed; save me and I shall be saved, for You are my praise.

Psalm 77:10-14 I said, “This is my anguish; But I will remember the years of the right hand of the Most High.” I will remember the works of the Lord; Surely I will remember Your wonders of old. I will also meditate on all Your work. And talk of Your deeds, Your way, O God is in the sanctuary; Who is so great a God as our God? You are the God who does wonders; You have declared Your strength among the peoples.

Psalm 6:2-3 Be merciful to me , Lord, for I am faint; O Lord, heal me, for my bones are in agony. My soul is in anguish. How long, O Lord, how long?    (I underlined these verses in July of 04. I had not found Remicaid yet)

and then all of Psalm 90 which I won’t quote the whole thing here, just a short passage: 90:13-17  Relent, O Lord! How long will it be? Have compassion on your servants. Satisfy us in the morning with your unfailing love, that we may sing for joy and be glad all or days. Make us glad for as many days as you have afflicted us, for as many years as we have seen trouble.  May your deeds be shown to your servants, your splendor to their children. May the favor of the Lord our God rest upon us; establish the work of our hands –yes, establish the work of our hands.  (underlined in August 20110, BUT  a lot of underlining in my old handwriting so pre 2005)

FINALLY, AN ANSWER! –OF COURSE, NOT THE ONE I WANTED

I had an endoscopy this last week. It was to check my reflux-in fact to put a little camera in to measure things for 48 hours. We also did it to make sure I hadn’t grown any new polyps this year. Last year, there were 11 of them between my esophagus and stomach.

We ALL got the surprise of our lives to see that I had a fungus ( candidas) growing out of control covering my esophagus all the way down to my stomach. When it is in the esophagus like that they call it, esophagitis. Traditional treatment is Nystatin. It doesn’t work.  I came home and promptly googled everything about the bacteria/fungus. Although it is a natural bacteria residing in the body, when it gets out of wack, it is very dangerous and can make a person very sick. This I know for sure. I believe, based on my reading that I have systemic candidas. Everything that has gone wrong with me this year can be traced back to it. Even the smell of the “bug” as I called it. I could smell it. I kept describing as a sickly sweet smell-yes, yeast! And candidas affects ears, the mouth, intestinal gas, bladder and kidney infections, asthma, RA–does any of this sound familiar? It’s amazing that when it gets in your intestines, it can release 70 different toxins. And of course no culture ever came back positive. Candida is natural to the body!

So I have a plan of action! I am not going to succumb to this! Now that I have a name to pray against and lock up, I will. When I see my pulmonologist next week, I will ask for a bronchosopy. It stands to reason that if its on my esophagus, its on my trachea, in my bronchii, maybe even my lungs–which would explain all the horrendous attacks…yet again why there was no culture. I have also researched a supplement that I have been told about that should really impact this problem-called Protamdin. I have a printout on it and am taking it to the doctor too. Finally all the websites suggested a complete nutritional change-perhaps something as radical as gluten free. I will work with a nutritionist on that. Those are the actions I can take. But mostly I am going to the throne room of my Lord God. I am going to ask for healing of this scourge. Again, now that we know the name, we can pray against it and bind it in Jesus Christ’s name.

I certainly believe it is worse because of my witness. I am out front and center in Linkedin now-this blog address is listed. My beliefs are listed. And when replying to any discussion, it is always whatever God tells me to write. But greater is He that is within me than he that is in the world.

 

A New Nodule To Get Over

It’s been a month since that scary asthma attack in May, but I have had a laryngitis voice ever since. Too long, I thought, so to protect those precious cords that don’t work right anyway, I scheduled an appt with my Voice/ENT. I thought maybe I had a virus, but no, of course not, it’s a rheumatoid nodule on the cord, the most fragile cord, my left one.  I was surprised, but why? I think God is just taking my body through the medical journals and hitting on all the hot spots. This way I understand how anyone I meet truly feels cause I’ve been there. So now, between the RA making the asthma flare and it putting a nodule on my vocal cord, I think I might have to take this disease more seriously! I have been so fortunate to have found Remicade a drug that really takes care of my pain, so that I forget I have RA. But apparently my body hasn’t forgotten and the inflammatory kind that I have is doing a number on me internally where I can’t see it-but the blood tests show it and now the nodule does. So where do I go for my comfort in this “one more thing”? Back to my Lord Jesus, for has He not suffered more than I and yet He gave it all for me.

He will be my road map. He is the WAY. I can’t worry about tomorrow or the next day, but this day that He has given me to live and to bear witness. So I have a voice of sorts but so much better than the time of no voice at all.  I have much to be thankful for.

My Latest Lesson-Freedom From Fear of Dying Of An Asthma Attack

On May 5th,  I woke up around 2:00 am, couldn’t  breathe well, and so did my nebulizer breathing treatments. Unfortunately,  that didn’t help at all, so after a few minutes of trying breathing exercises, I got my husband up to take me to the hospital.  FIRST MISTAKE! We should have called 911. We hurriedly put clothes on and he took off for the new hospital (SECOND MISTAKE) close to us. In the car, I began to have a more and more difficult time getting any air at all, but eventually we got there and they took me back immediately.  This is when the trouble really starts though.  I got oxygen immediately and a nurse started trying to get an IV into my arm. I am sucking air by now and pretty panicked. I had prayed on the way “Lord, if this is my time, be with me. If it is not, let me be a good witness”.  I knew my husband was over with the Doctor talking about why I didn’t want to be intubated; I could hear the alarms going off over and over and everyone seeming to either not know what to do or not be able to do it. Then, all of a sudden, I was back in the corner, watching what was going on in the room. I saw me sucking air, and the nurse sticking me for the 6th time, my husband having left the doctor telling the nurse on my right side, thanks, because she had gotten an IV started on her first try in that arm. And then I heard my Father’s voice next to me saying, ” see Cindy? I am here with you. I will always be with you. There is nothing to be afraid of-whether it’s time to go night or just get through the attack, I will be right here with you. And He was right! I was completely at peace where I was with him. I know my Father would never lie to me, and I nodded and then suddenly I was right back in it-sucking air, but now, no panic. I think my hospital records would confirm this too. And there was no intubation, they used a bipap machine on high to force air through my nose into my lungs.

No one knew it then, but my rheumatoid Arthritis had flared and super inflamed all of the  lungs and I couldn’t get air in or out. I’m sure there is a more technical explanation, but that’s the simple one according to the blood tests. I didn’t react quickly enough, because it didn’t act like my normal bronco spasm asthma–which is a lot of coughing before I shut down. Very weird. I was in ICU for a day, once I was stable and then they moved me to a room. I was there until the 10th. When the pulmonologist (hospital) came in, I told him, I was still very congested and really didn’t feel well enough to go home, but he insisted.  I was not to talk on the phone, run around, work, do much of anything. I agreed and went home. To sleep, I have to be inclined about 45 degrees so I am on a lot of pillows.

We say my pulmonologist the next day and boy, did I get a lecture about waiting to go to the hospital! I relayed my experience and promised I would not be going back to the new hospital for any kind of asthma related emergency treatment. It’s just as well that I go to the main hospital. All my records are there. My doctors who know me are there and someone is always available 24/7  for an emergency like I experienced the night of May 5th. So I promised to really pay attention as to the future asthma issues, she listened to me. Told me I sounded ok, improving, and we went home.

I still kept to the light work schedule as I really wasn’t well yet–my voice definitely was strained. I did my breathing treatments and took my prednisone, but when I tried to lay down to sleep that Friday night, I had so much pressure and congestion that I couldn’t get comfortable. While I wasn’t in deep trouble with my breathing, I had promised to come with ANY problem with the breathing. So I said, ” I don’t feel very well”. That was all it took for my husband. He said, “ put your jeans on, we are going to the hospital”. I really didn’t want to go. I just wanted him to listen to me breathing, but he had had enough the last time, so off we went. We forgot about Friday nights at the ER! Because I was coming in before I was not breathing and gasping, they let me sit there a couple of hours, so that by the time they took me back, I was in distress–notice, I said distress. I did have major congestion again. No air coming in or out-they couldn’t hear anything moving. But I never panicked. I got the different things I needed–oxygen, solu-medrol-, they did a blood gas–ooh that hurt, ok, but still can’t hear any air moving. I simply can not take a deep breath either. So about 5Am, they decide to keep me. At that point, I sent my husband home and told him to go to bed and not come back that day. That visit was 5 days too!

God has spoken to me and I’m not kidding

Anyone who has read my blog of the last year and a half knows of my journey. So please bear with me while I recount the last 2 wks. Two weeks ago, our pastor gave a sermon on stories and used my life verse, ll Cor 1:4 as the text.  The jist of it was that really our life is not about getting there–the destination, it is about the journey. It’s about our experiences, our sphere of people we interact with (whether we want to or not), just everything that touches us. The Bible says that EVERYTHING that comes to us is filtered through His fingers. So for all my life I have asked, Why did you give my this body Lord?  Why did I have to have this happen to me? Why can I not stay well? Why do I have to live with constant pain, Why, Why, Why? So how could my loving, gracious all powerful holy Father let this all happen to me? First I believe you really have to go to the Word of God for answers, for comfort, for knowledge, even for help in my believing, but unbelief too. This isn’t something that you get from self help books or even counselors–this is between you and holy God. So as I was studying in Isaiah in my weekly lesson, in one chapter it kept saying “in the womb I formed you” over and over and at first I grumbled but then I remembered in Psalms where God said He knit my innermost parts together and in Jeremiah He says that he has a plan to care for and prosper me. Then I went back to my life verse and as I began to read it, God began to tell me why. I never expected an answer!  Afterall, He is God of all and doesn’t have to explain anything he does. But this is what he told me.

Cindy, I love you. I have loved forever and will always love you. Nothing will separate you from my love. My child your life has been a series of stories, sometimes miracles that I have done, so that whenever you meet someone  there will almost be instant rapport because you and  that person or their loved one has gone through  the same physical trial you have and you know exactly how they feel and so can offer comfort. Physical issues and pain bring people together along with other things you’ve experienced. I know that you have been going through the trial of affliction and that you have had to come through a lot of losses in the past 3 years but my child, now you are truly dependant on me. My child, you must trust me for my promises. and then He said it again, Trust me.

So now I wait for Him to act on those promises. But I will never again complain about my body-all I will do is look about in anticipation of who the Lord is going to bring to me to share and comfort with!

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