CindyFrench-stranger than fiction stories

about facing life with hope and confidence, no matter the diagnosis

Archive for the category “systemic diseases”

A Breakthrough

I thought I had all of the answers the last time I wrote. Oh, how wrong I was on that one! I thought we had understood and really comprehended what I have, what I need to do, the consequences when I don’t–but as I began to read about immunoglobulin disorder, I’ve found it’s not so simple-especially mine, since it is genetic. The one light hope is that a friend of mine is in the business and has great reassured me about the safety of the infusions, because to get one small little infection would be a catastrophe for me. My numbers in that particular area are so low, that I truly have no immunity and I have no stamina. I also can no longer be on Remicaid, the only thing keeping the RA pain under control so I am back to Vicodin of course you really can’t take it as often as you need to because you have to work. I also found out that Vitamin D has to do with your immunity and I don’t make it either! I wish I had had my docs really conferring together two years ago-might have avoided some of last year, but I know there were lessons that God wanted me to learn through everything. 

I have to admit to being a little overwhelmed this week. I’ve been trying to do what the doc said, trying to work, trying to be a wife.. I know that’s what they’ll tell me on Monday anyway.Each morning Dennis and I have prayed for wisdom and guidance, for strength and healing for me and I would just do what I had to do. Work through my day. Get it done. But today as I was driving home from a couple of errands, I started to pray as I passed a couple of churches and then the sun broke through the clouds. It was beautiful and the Lord began to tell me again that I could do all things through Him. That He knew that pain and would bear it for me. He reminded me that nothing touches me that hasn’t been filtered through the Father. I told him I was glad they had such confidence in me, but that I am not that sure of me at all. That’s when Jesus reminded me that he carries me when things get to be too much for me.

SO FINALLY, all of a sudden, I felt this release and I could then say thank you  for my circumstances, whatever they may be, because I know that when the Lord takes me places, He puts me with people that need to hear about Jesus.  Then I began to pray for those people that the Lord is going to bring to me. That He will be calling to them, preparing their hearts and minds for the Good News.

More New Meds!

We went back to the GI Dot today for follow up after my endoscopy last week. He told us that in all his years of practice, he had never seen such a bad, overwhelming case of this systemic candida.  I saw pictures and compared with what it is supposed to look like vs what it does look like is amazing. It’s like one of those powdered donuts you buy instead being a glazed donut. Yeah, pretty awful comparison, isn’t it?

Well, at least I know I am not crazy. There are physical reasons for all that I have been through and am going through now. I think the fatigue is the hardest thing, because it is so overwhelming. So I got a bottle of ProBiotics. I am to take a double dose every day for 2 months. I am already on the antifungal double dose for 3 weeks with the warning I may have to stay on it longer too. I am not sure how they will determine if the stuff is gone.

All I know is Greater Is He That Is Within Me Than He That Is In The World. I know He has a purpose to all of this. But I have to say honestly tonight, it is hard. The sores on my mouth are not healing, but seemingly worse and larger–I would assume because of the infection. But I don’t know who to see, or what to do about it-other than to pray.

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